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GoodRx Guide

Caregiving: Your GoodRx Guide

Anne Jacobson, MD, MPHKatie E. Golden, MD
Published on January 6, 2023

Who is a caregiver?

A caregiver helps a person who can’t independently care for themselves. Often, this means taking care of an older adult or someone with a terminal health condition. It can also be caregiving for a child with a serious illness or special needs.

Some people work outside the home as professional caregivers. But here we will be talking about unpaid caregiving. This kind of caregiver usually helps a family member or someone close to them. This might be a:

  • Parent

  • Spouse

  • Relative

  • Neighbor

  • Close friend 

A caregiver may live with the person receiving care. But a caregiver might also be a friend or family member who lives nearby. Sometimes it even means coordinating or providing services from a distance. 

What is the role of a caregiver?

A caregiver’s role often depends on the person who needs care. It also depends on the amount of outside resources that are available to help. 

A caregiver’s responsibilities can vary in:

  • Intensity: Some caregivers need to provide medical and physical support round the clock, like for someone who had a serious stroke. In other cases, the caregiver may only need to help with certain tasks, like grocery shopping or bathing. 

  • Length of time: Sometimes a person’s needs last for a limited time. An example of this is someone who is recovering from a major surgery. But, in many cases, the person’s needs are for a permanent condition.

  • Stability: Someone's needs can vary from day to day or be unpredictable. This may occur in mental health conditions, for example. But with something like a stroke, the level of caregiving may be somewhat stable. 

  • Path: Many kinds of caregiving become more complex over time. An example is caring for someone with dementia. And many caregivers also have an important role in meeting physical, emotional, and spiritual needs at the end of life.

What does a caregiver do?

It may be obvious what kind of help a person needs. But a lot of caregiving goes on behind the scenes. And, in many situations, it changes with time or circumstances. 

Caregiving can include:

  • Household tasks: cleaning, laundry, and meals 

  • Organizational support: bills, finances, and appointments  

  • Hygiene: dressing, bathing, going to the bathroom, and brushing hair and teeth 

  • Safety: promoting safety inside the home

  • Mobility: getting around at home and outside of the house  

  • Emotional health: communication, companionship, and support 

  • Medical needs: medications, appointments, at-home testing, and wound care

Caregiving also happens in different forms and places. A caregiver may:

  • Live with the person receiving care

  • Provide in-person care but not live with them

  • Provide help alongside a professional caregiver 

  • Give extra care to someone living in an assisted living or nursing facility

What are the challenges of caregiving?

Many people find meaning and purpose in caregiving. But there are also plenty of challenges and concerns. 

Caregiving can take a toll on the caregiver’s own physical health. Caregivers have more health conditions like cardiovascular disease, diabetes, and cancer. They report more pain. And they have higher levels of stress hormones and inflammation.

Mental health is also a challenge. Stress, burnout, and depression are real concerns. Caregiving can also strain relationships with family and friends.  

Caregiving can be a financial stress. Caregivers may have to take days off work, lose promotions, or use their own money to help pay for care.

Many caregivers seek education and training in caregiving. This includes learning about healthcare and safety as well as making legal and financial decisions.

What does a caregiver need?

When you’re busy taking care of others, it helps to remember your oxygen mask. You know that announcement they make on airplanes, how you should put on your own oxygen mask before helping someone else? That also applies to caregivers.

Taking care of yourself might not be at the top of your to-do list. But it’s important for your long-term physical and mental health as well as the work that you’re doing right now. Experts recommend starting with reminders like these:

  • Eat a healthy diet.

  • Stay active with exercise you enjoy.

  • Get enough sleep.

  • Try deep-breathing exercises or meditation.

  • Pay attention to your own health (like medications and healthcare visits).

  • Stay involved with activities you enjoy.

  • Carve out time for your personal relationships.

  • Say “no” when you need to, and ask others for help.

Resources and support

Taking care of someone else requires a strong support network. It might help to know that, as a caregiver, you’re not alone. Nearly 1 in 5 people in the U.S. are providing unpaid care for someone who needs it. But when you’re in the middle of it yourself, even looking for help can feel overwhelming.

Your local government and social service agencies can be good places to start. Many communities have programs for older adults and people with special needs. 

You can also check out these online resources:

Common concerns

What can you do to help with caregiver stress? 

Taking good care of your own needs is a good place to start. Other people have found it helpful to: 

  • Join a support group.

  • Make to-do lists and have a regular routine.

  • Take a break. Enlist the help of family and friends. Or look into day-care or respite programs.

  • Engage with other people. Let others take care of you sometimes.

Is a caregiver different from a caretaker?

Both words are used, but “caregiver” is more common. “Caretaker” often refers to someone who is paid to do hands-on tasks. The term “caregiver” usually describes a family member or friend who takes care of someone else.  

Can you be paid to be a caregiver?

There are agencies and programs where you can get a job as a paid caregiver. Often it’s not possible to receive payment to care for someone in your own family. But some Medicaid programs or veterans’ benefits may reimburse for family caregiving.

Is there any training available for caregivers?

Check out local and online resources. Talk with healthcare providers and ask questions. There are also some free courses and certifications for caregiving.

References

Alzheimer’s.gov. (n.d.). Tips for caregivers and families of people with dementia.

Alzheimer’s Association. (n.d.). Caregiving.

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American Cancer Society. (n.d.). ACS patient programs and services.

American Medical Association. (2018). Caring for the caregiver: A guide for physicians.

American Psychological Association. (2020). Common caregiving problems.

American Stroke Association. (n.d.). Family caregivers.

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National Alliance on Mental Illness. (n.d.). Family members and caregivers.

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Parkinson’s Foundation. (2019). Top 10 essential caregiver resources.

Social Security Administration. (n.d.). Supplemental security income.

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Well Spouse. (n.d.). Supporting spousal caregivers.

GoodRx Health has strict sourcing policies and relies on primary sources such as medical organizations, governmental agencies, academic institutions, and peer-reviewed scientific journals. Learn more about how we ensure our content is accurate, thorough, and unbiased by reading our editorial guidelines.

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