When caring for a loved one with a gastroenteropancreatic neuroendocrine tumor, or GEP-NET, one complication is carcinoid syndrome. This may cause many symptoms that can affect your loved one’s quality of life.
Carcinoid syndrome is a group of symptoms such as:
Diarrhea
Abdominal cramping
Flushing
Loss of appetite
Symptoms of carcinoid syndrome stem from extra hormones (like serotonin) released by GEP-NET cells.
What may trigger carcinoid syndrome?
Carcinoid syndrome can happen spontaneously in some cases. Other times, certain factors may trigger it, explains Kimberly Perez, MD, Medical Oncologist with Dana-Farber Cancer Institute in Boston.
Some triggers of carcinoid syndrome include:
Alcohol
Caffeine
Chocolate
Exercise
Spicy food
Stress
Anesthesia
How can you help your loved one avoid triggers of carcinoid syndrome?
One way to help your loved one avoid the trigger of stress is to help them with their household tasks and other responsibilities, says Perez. You can also serve as a sounding board or confidante as they weather the stressful experience of cancer.
If needed, you can also help direct them to a therapist or social worker who can provide more specialized mental health support.
“If you find that your loved one is experiencing more symptoms related to their carcinoid syndrome, please reach out to [their] care team, or ask your loved one to do so,” says Perez.
Your loved one’s care team is there to offer help with symptoms, but also advice on how to decrease stress and manage other triggers of carcinoid syndrome.
Kimberly Perez, MD, is a Medical Oncologist at the Dana Farber Cancer Institute in Boston, MA.
References
American Cancer Society. (n.d.). Caregiver resource guide.
American Cancer Society. (2018). Signs and symptoms of gastrointestinal carcinoid tumors.
American Cancer Society. (2018). Treatment of gastrointestinal carcinoid tumors, by extent of disease.
American Cancer Society. (2023). When someone you know has cancer.
Pandit, S., et al. (2023). Carcinoid syndrome. StatPearls.
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